Toddler walks outside for first time ever after life-saving double lung transplant

July 16, 2018 John Health News 0

Mae Vogel-Koslow, 2, takes her first steps outside after having spent her whole life in the hospital hooked up to a ventilator.

 (SWNS)

This is the heartwarming moment a toddler who has spent her whole life in hospital was allowed to go home for the first time after a life-saving double lung transplant.

Mae Vogel-Koslow, 2, was diagnosed with pediatric interstitial lung disease four weeks after she was born in February 2016.

The tot, from Somerville, Massachusetts, was born without the gene ABCH3, which is responsible for making the protein that lines the lungs.

As a result she struggled to breathe by herself and spent the first 20 months of her life on life support in the hospital after undergoing surgery to have a trach fitted at six weeks.

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Her parents Courtney Koslow, 41, and Maura Vogel, 45, originally placed her on the list for a double lung transplant when she was 3 months old but decided to wait to see if her condition improved.

But by August 2017, Mae’s health had deteriorated drastically and the moms decided a transplant was the only way to improve their daughter’s life.

Mae Vogel-Koslow born in February 2016. This is the heart-warming moment a little girl who has spent her whole life in hospital walked outside for the first time after a lifesaving double lung transplant. See SWNS story NYLUNGS. Mae Vogel-Koslow, two, was diagnosed with pediatric interstitial lung disease four weeks after she was born in February 2016. Geneticists at Massachusetts General Hospital determined that Mae was born without the gene (ABCH3) that is responsible for making the protein that lines the lungs, which made breathing on her own extremely difficult. Mae, from Somerville, Massachusetts, underwent surgery at six weeks to fit her with a trach and spent the first 20 months of her life hooked up to a ventilator in hospital. The little girl’s parents Courtney Koslow, 41, and Maura Vogel, 45, originally placed Mae on the list for a double lung transplant when she was three months old but decided to wait to see if her condition improved. By August 2017, Mae’s condition had changed and moms Courtney, an affordable housing developer, and Maura, an associate director, decided a transplant improve the tot’s quality of life.

Mae was diagnosed with a pediatric lung condition at just four weeks old.

 (SWNS)

Just 30 days after reactivating Mae’s spot on the transplant list, the toddler underwent a double lung transplant at Boston Children’s Hospital on September 16.

Three weeks after surgery, a vent-free Mae walked out the front doors of the hospital for the first time with her parents and big sister Rosie,4, in a moment that was captured on camera.

“It was magical to see this thriving little person be so free for the first time in her life,” Koslow, an affordable housing developer, said. “When they told us she could come home it felt unreal.”

Mae Vogel-Koslow in the days after the transplant. This is the heart-warming moment a little girl who has spent her whole life in hospital walked outside for the first time after a lifesaving double lung transplant. See SWNS story NYLUNGS. Mae Vogel-Koslow, two, was diagnosed with pediatric interstitial lung disease four weeks after she was born in February 2016. Geneticists at Massachusetts General Hospital determined that Mae was born without the gene (ABCH3) that is responsible for making the protein that lines the lungs, which made breathing on her own extremely difficult. Mae, from Somerville, Massachusetts, underwent surgery at six weeks to fit her with a trach and spent the first 20 months of her life hooked up to a ventilator in hospital. The little girl’s parents Courtney Koslow, 41, and Maura Vogel, 45, originally placed Mae on the list for a double lung transplant when she was three months old but decided to wait to see if her condition improved. By August 2017, Mae’s condition had changed and moms Courtney, an affordable housing developer, and Maura, an associate director, decided a transplant improve the tot’s quality of life.

Before her transplant, Mae was unable to walk independently and could not talk because of her trach.

 (SWNS)

“When we were leaving and Mae walked through that door she hesitated,” Koslow said. “You could tell she was thinking ‘This is weird.’ She had never come through that door on her own before, she had always been on a stretcher with EMTs or doctors. That moment was so exhilarating for us.”

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Before her transplant, Mae was unable to walk independently and could not talk because of her trach, but her parents say there’s no stopping her now.

Vogel, an associate director, said it was a special moment to see her daughter swim in the ocean for the first time last week while on a family holiday to North Carolina.

“Mae loves being outside. Any chance she gets she’s out there running around,” Vogel said. “We think that her first 20 months spent in hospital has something to do with it. We went to North Carolina to visit my parents last week and Mae wouldn’t come out of the ocean. There was just no getting her out of the water.”

Mae Vogel-Koslow. This is the heart-warming moment a little girl who has spent her whole life in hospital walked outside for the first time after a lifesaving double lung transplant. See SWNS story NYLUNGS. Mae Vogel-Koslow, two, was diagnosed with pediatric interstitial lung disease four weeks after she was born in February 2016. Geneticists at Massachusetts General Hospital determined that Mae was born without the gene (ABCH3) that is responsible for making the protein that lines the lungs, which made breathing on her own extremely difficult. Mae, from Somerville, Massachusetts, underwent surgery at six weeks to fit her with a trach and spent the first 20 months of her life hooked up to a ventilator in hospital. The little girl’s parents Courtney Koslow, 41, and Maura Vogel, 45, originally placed Mae on the list for a double lung transplant when she was three months old but decided to wait to see if her condition improved. By August 2017, Mae’s condition had changed and moms Courtney, an affordable housing developer, and Maura, an associate director, decided a transplant improve the tot’s quality of life.

Her parents say that the 2-year-old is now unstoppable.

 (SWNS)

“Last year that she was a baby in a hospital crib hooked up to a vent and now she’s swimming in the ocean,” she said. 

“She’s so spunky and she has a lot of opinions,” Koslow said. “She loves dogs even though we don’t have one. She loves looking at pictures of them. She’s really, really social and great at making friends. Every moment with her is so special to us. We absolutely made the right choice deciding to go the transplant route. The quality of life that she now proves that.”

Koslow and Vogel said the family of Mae’s generous organ donor is never far from their minds.

“We plan on writing the donor family a letter, which they have access to should they ever want to,” Vogel said. “The gift they’ve given Mae and our family is so special but on the other side of transplant there is a sadness there because someone has lost a child. We’re aware of that every day.”

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